HomeMy WebLinkAbout2004 May as Neurofibromatosis Awareness Month
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OFFICE OF THE MAYOR
WINTER SPRINGS, FLORIDA
Whereas, the Children's Tumor Foundation is observing Mayas National Neurofibromatosis
Awareness Month to inform the public about this common genetic disorder; and
Whereas, Neurofibromatosis is more prevalent than Cystic Fibrosis, Duchenne Muscular
Dystrophy, and Huntington's Disease combined; and
Whereas, over 100,000 Americans have Neurofibromatosis and one of every 4,000 newborns will
develop the disorder, it nevertheless is relatively unknown to the public; and
Whereas, Neurofibromatosis causes tumors to grow along nerves throughout the body, and can
affect the development of other parts of the body, such as bone and skin tumors, bone deformities
such as scoliosis of the spine, leg bowing and/or twisting, progressive loss of hearing, sight and
balance, learning disabilities, and other symptoms; and
Whereas, the Children's Tumor Foundation promotes and supports research aimed at finding the
causes of the disorder and developing treatments and a cure, provides information to people with
Neurofibromatosis, informs the public about the disorder, and is a resource for medical and health
professionals; and
Whereas, while researchers have identified the genes that cause Neurofibromatosis, much
remains to be done to raise awareness and funding to develop methods of prevention, treatment and
a cure; and the Children's Tumor Foundation (www.ctf.org, 800-323-7938) leads the efforts in this
regard.
NOW, THEREFORE, I, JOHN F. BUSH, by virtue of the authority vested in me as Mayor of the
City of Winter Springs, Florida, do hereby proclaim the month of May as
,.., NEUROFIBROMATOSIS AWARENESS MONTH ,..,
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John F: Bush
Mayor
Robert S. Miller
Commissioner
Michael S. Blake
Commissioner
Donald A. Gilmore
Commissioner
Sally McGinnis
Commissioner
Joanne M. Krebs
Commissioner