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HomeMy WebLinkAbout2009 05 11 Awards and Presentations Item 303 Recognizing Neurofibromatosis Awareness MonthDate: May 11, 2009 The attached was Proclaimed by Mayor John F. Bush in conjunction with Awards And Presentations "303" during the May 11, 2009 Regular City Commission Meeting. COMMISSION AGENDA ITEM 303 May 11, 2009 Regular Meeting AWARDS AND X PRESENTATIONS Mgr. / Dept. Authorization ANN ARDS AND PRESENTATIONS 303. Office Of The Mayor Presenting A Proclamation Recognizing "Neurofibromatosis (NF) Awareness Month." C?% OFFICE OF THE ;K YOR WllNTER SEUNGS, FLORIDA , - t , ,, Neurofibromatosis (NF) is a neurological disorder affecting one in every 3,000 children born, more than lRouD Americans total; is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntington's Disease combined; and k,_S? NF causes tumors to grow on nerves throughout the body and also can affect development of the brain, cardiovascular System, bones and skin; and affects people of all races and ethnic origins, and both sexes equally; and NF can lead to the loss of sight or hearing; skeletal defects such as abnormal curvature of the spine or bowing of the leg; learning disabilities; disfigurement; chronic pain; cardiovascular problems, including high blood pressure, cancer, and a wide variety of other complications; and The Children's Tumor Foundation leads efforts to promote and financially sponsor world-class medical research aimed at finding effective treatments and, ultimately a cure For NF; works to improve access to quality patient healthcare through its national NF Clinic Network; and The Children's Tumor Foundation provides patient and family support through its information resources, youtl programs, and local chapter activities - and as much remains to be done in raising public awareness of NF to hel[: promote early diagnosis, proper management and treatment, prevention of complications, and support for research - the Children's Tumor Foundation is observing May as National Neurofibromatosis (NF) Awareness Montl- to educate the public about this common genetic disorder. % I, J, OR F, BUSH, Mayor of the City of Winter Springs, do hereby Proclaim the month of May, 700H, in recognition of this important initiative and in honor of r N WHAESS WHEK1,011, I ILeretinto haw sct my hand and caused the ,)eat of Vie City 01 Vl`iliter. nin 's to lie rf red s L l°` ac oI'NIay, 2009. 11104N.F. BL)"SH, NIA'Y'OR Children's. A? s? . ajp t 41? ?,, .1s ._